After Rylan died I was contacted by a friend of mine who had a lost her child to SIDS over 40 years ago. I find it so hard to accept that SIDS has been claiming the lives of children for that amount of time or longer and we still have no answers. Although I can not have Rylan back I can make the choice to honor him and do my part in stopping this from claiming the lives of future infants.
SIDS or Sudden Infant Death Syndrome is the death of an apparently healthy infant under the age of one where there is no explanation or cause of death. To me it just sounds completely unreasonable that there would be NO explanation even after a detailed autopsy is completed. There must be some reason for this horrible thing claiming the lives of several thousands of infants each year, devastating thousands of families. Sadly there is not; and quite frankly I want to know what is causing this before a child dies not after. If we can figure that out then we can stop it before it happens. At this time there are no warning signs of SIDS, the first and only symptom is death.That is why hundreds of people gathered on September 15, 2012 at the Hogs for Hope bike run/pig roast in Bellingham, MA
Hogs for Hope was established by Scott and Carolyn Zona, who are 18 years into surviving the death of their son, Coady to SIDS. This year was the 2nd annual Hogs for Hope benefit for SIDS research. Proceeds from the event were donated to the Children's Hospital in Boston, where Dr. Hannah Kinney and a team of researchers are evaluating the possibility that SIDS is caused by a developmental defect in the brain stem compromising respiratory control during sleep. Dr. Kinney and her colleagues are on the verge of pinpointing a cause and Hogs for Hope is making great strides into supporting this important development.
In order to keep the cost down allowing it possible for more of the proceeds go directly to this cause Scott and Carolyn along with their children made t-shirts. Their teenage daughters volunteered their time face painting. Friends volunteered by cooking and many Businesses and Supporters donated items to be raffled off. This truly was a community coming together to support a great cause. Let's stop SIDS!
Hogs for Hope
What is SIDS?
What SIDS is not?
How can you help?
This post is dedicated to Scott & Carolyn Zona, All the lives taken by SIDS including my own son, Rylan and Dr. Hannah Kinney and her team at Children's Hospital Boston.